I am glad that week has passed and I hope it takes all its negativity and leaves. The week did not bring much good right from the start.
I went in for blood work last Tuesday morning at 10:15. When you have blood work on the day of a treatment it is scheduled for two and a half hours before treatment. This is theoretically the time required for the lab to perform the testing and the treatments to be prepared by pharmacy after receiving acceptable results. When the nurses looked at my port they decided not to use it. The incision had previously been healing well, but I noticed on the weekend that it had opened slightly. The opening was just enough to make them decide to err on the side of caution, later to be confirmed as the correct decision. I was sent to the lab for bloodwork, but was called away for my Dr’s appointment before I could get the samples drawn. Due to a miscommunication I was left sitting in the exam room for almost an hour and a half waiting for the doctor to arrive. It wasn’t really that big of an issue as I had to wait for my chemo that afternoon anyway. When I finally did see the doctor she ordered home hydration for the next three weeks, and sent me off to have my bloodwork.
By this time it was 12:00 and my chemo was scheduled for 12:45 and I did what had to be done. I grabbed my bag of samples and delivered them to the lab. My results were delivered on time as I knew they would be thanks to my awesome co-workers.
My sister was spending the day in treatment with me to give Rob some time to work. Each time I had a treatment I had noticed my face would flush and I would feel strange for just a minute or so. I let the nurses know and each time they said they would keep an eye on me. This treatment started as normal, but at 38mls of a 529ml infusion things went south. It started with the facial flushing, and quickly progressed to a full-blown anaphylactic reaction. As soon as it started to worsen I told Lana to get a nurse and there was none to be seen. With a little uproar they came running and by that time I was having difficulty breathing, and felt like there was an elephant on my chest. My IV was immediately stopped and I was given large doses of Benadryl, Solu-medrol and Ranitadine. It took about 45 minutes for the room to stop spinning and the treatment was slowly resumed. Sadly this reaction doesn’t mean I can stop the chemo, it just means I need extra steroids and Benadryl each week before the treatment starts. Not my idea of a fun time.
I had to have an IV started for the treatment since my port was not being used. They found a vein in my hand and decided to leave the access in place for the home hydration that was ordered for the following day (Wednesday). When I hadn’t heard from anyone by late Wednesday morning I figured a call was in order to confirm that someone would be coming. No order had been received, so I called oncology and found the order hadn’t been placed. This was rectified and I got a call saying supplies would be delivered to me that evening and a nurse would contact me. I received the supplies at 7:45 pm and waited for the nurse contact. At 10:45 I made the call myself. Apparently they did not have the order, but they would get it in the morning and set up a time. I got the call at 11 am that someone would be visiting me between 11:30 ans 12:30. She arrived on time, but when she attempted to access the IV site it had gone interstitial (infiltration). She was a new nurse and couldn’t attempt to place a new IV without supervision. I received two calls later in the day with regards to placing a new IV, but declined. I decided it was better for me at this point to increase my fluid intake and cut my losses for the week.
Thursday evening when I looked at my port incision I didn’t like what I saw. They had placed steri-strips over the incision and they had become increasingly wet over the day. Friday morning I called oncology and they recommended I come in. Upon removal of the strips it was discovered the incision had a one and a half centimeter opening and requireda stitch. Luckily there was a doctor in the department willing to do that for me and I was discharged quickly.
Lastly, my ankles have decided to rebel. They are swollen and puffy and achy and I am grateful it is sandal season as I’m sure everything else would feel worse.
After that long week, a new one has begun. I went for blood work this morning and my port was accessed (whew). At noon I went to try on a wig. Up to this point I had not made any progress but now with a little luck I will have red curls by the end of next week. This week looks better already.